SB Update

I don't write a lot about Fiona's spina bifida on this blog. Partly because she is so little and we haven't seen much of the effects yet. And partly because I don't want her to be defined by a label. To borrow a mantra from our friend Josh, "Fiona has spina bifida, but it does not have her." We want our girl to know that she is someone special and that the spina bifida is just a small part of that. But it is our reality, so I do want to share her challenges and milestones.

We had a good round of doctor appointments yesterday. At her 4 month well check, she measured in at 14 lbs, 13 oz (70 percentile) and 25.5" long (90 percentile). The pediatrician was pleased with her growth and she did awesome with her shots. We also visited the spina bifida clinic for the first time where all the doctors, including the rehab doctor, were quite impressed with her movement. The only little blip in the day is that she has a bit more fluid in her brain than she did in December. This could be a natural thing because of recent shunt adjustments or it could be an early sign that her shunt is failing. We go back in a few weeks to check it out again. Think good thoughts for us!

And in case you were wondering what to get Fiona for a present - doctor office paper is the coolest thing EVER!